Sunday, August 07, 2005

Fetal Alcohol Syndrome & Alcohol Related Neurodevelopmental Disorders????

In Oregon Families who Adopt children from foster care have the ongoing support of Oregon Post Adoption Resource Center which has been a life saver for us. It was their office that Talked Me Through the issues last summer and helped me get Makala into the hospital and find help!

Anyway, I have been talking with ORPARC and to help find good respite care. And they just sent me a booklet "Trying Differently Rather Than Harder" By: Diane Malbin, M.S.W.

Oh My Goodness!

I keep wondering WHY NO ONE has done any neurological testing with Makala YET? and What on earth does it actually TAKE in order to get the referral and have these tests done?

Personally, If I was in Charge of the World one of the things I would advise New Adoptive Families to do is take their special need, older and leaving Foster Care Children and HAVE EVERY TEST UNDER THE SUN DONE!

I realize that all of these tests are expensive and may or may not lead to the right care but WHO NEEDS THIS MORE THEN OUR CHILDREN?

Why does it take 2 1/2 years and five different doctors, and therapists to even get to a point where the PARENT is looking for the actual answers. This booklet is 79 pages (small) and I do not have a degree in anything but, can see and identify 100's of reasons why testing is called for and should have been done 2 years ago!

Anyway--I will be working through this whole issue on the site and here and seeing what comes of it.....

Today should be interesting because we have the Company Picnic at the Zoo! Yippy! Last year the picnic was the morning after Makala was released from the hospital....Seems that NOTHING really has improved over this whole year! URGH! Anyway, it should (hopefully) be a FUN day at the Zoo and I have to get myself going or I won't want to go....so I will write more later.....

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